Kiah has lived with Alopecia Universalis since she was almost four years old. Never one to let it hold her down, Kiah, her sister Kaycee, and the rest of her family have actively promoted alopecia awareness in the Milwaukee area since their first NAAF conference in 2007. Kiah, Kaycee and their friend Alicia have been spreading the word in their own way for the past three years by remixing popular songs and giving them and alopecia areata twist. You can check out their work on the "Media" tab above. Kiah was also the winner of the 2013 "America's Next Top Alopecia Model" contest hosted by Follea and Peggy Knight Solutions. See the contest page along with her story in her own words here.
For additonal information please check out Kiah's Alopecia Awareness facebook page!
Max is 10 years old and started losing his hair at 4 1/2. This further progressed to Alopecia Universalis over the following year. He is happy and healthy and is very open about sharing his condition with whomever wants to hear about it. He loves football, especially the Packers, baseball, and basketball. He has a red belt in Tae Kwon Do. He has an older and younger sister, and both of them have donated their hair to Locks of Love. Please feel free to contact us at any time...You are not alone.
Ava was diagnosed with Alopecia Areata in July 2012 which eventually progressed into Alopecia Totalis. Regardless of her hair loss, she remains a loving, kind, and high spirited 4 year old. Ava had the opportunity to attend the NAAF conference this year in St. Louis, Missouri, where she was able to meet so many others like herself. She knows that she isn't alone in this and is always excited about meeting up with her "Alopecia Friends".
Ava and her family are dedicated to raising awareness, providing encouragement to others and raising funds for research to one day find a cure!
Check out Ava's Blog http://www.caringbridge.org/visit/avaherbst
Morgan felt like a rock star at our first annual benefit, thanks to all of you, and we are happy to report that at this time, she is symptom free, and her hair is fully grown back in, and past shoulder length again. However, it has not been without bumps in the road. She did redevelop a bare patch on the back of her head, which was able to be covered, and treated, and regrowth occurred there as well. She has also recently started worrying again that she is losing hair, which we haven’t been able to confirm if it is normal hair loss or the start of another cycle. This is the difficult nature of this disease, as it is so unpredictable, which can be very damaging from a mental and emotional standpoint. Even though she is symptom free at the moment, she wants to continue the fight to grow awareness and treat this disease, and here we are for our 7th annual event! We have, however, changed the name from “Ride For Morgan” to “Morgan’s Ride For Alopecia”, as we don’t want people to think we are raising money for her, especially as she no longer even looks like she is afflicted. We look forward to seeing all of you again and many new faces as well.
Have you or someone you love been affected by Alopecia Areata?
Share your story with us here!
We will only share your story with the group if you want. Help others through your own experiences.